Beard Up Boys shave-off at Ori Hotel on August 26

By Ilsa Cunningham
Updated August 21 2017 - 11:03am, first published August 19 2017 - 7:30am

It’s been an itchy and uncomfortable 10 weeks, but it’s nothing compared to what kids with ataxia-telangiectasia (A-T) have to endure.

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